Jocelyn Bingaman’s Voice of Rett Syndrome

jocelyn-bingaman

My Coldwell Banker Advantage family asked me to share my story of ‘Home’.

Hi, my name is Jocelyn Bingaman and I am a sassy 12-year-old girl who loves watching movies, listening to music and attending school. I live in St. Joseph, Michigan, with my mom (Cathy), dad (Mike) and dog (Bear).

I have a rare terminal illness called Rett Syndrome.

Rett Syndrome is a neuro developmental disorder affecting girls exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability and many other difficulties.                                           I am unable to talk (although I still rule the roost), walk or care for myself. I used to be able to eat by mouth but this stupid disease took that from me and now I am fed through a feeding tube in my tummy. My amazing parents lovingly care for me 24/7, along with family, friends and caregivers.
Now that I am almost a teenager or diva (as I like to be called), transporting me in a regular car is very difficult as my parents have to lift my cute 100 lb. self and very heavy wheelchair, in and out of the car.  Friends see the strain this has put on all of us physically and want to help us acquire the necessary van with wheelchair lift to get me around while educating others on Rett Syndrome.                                    While we have given Jocelyn a voice, we pray you will read more on Rett Syndrome and help us buy the van with wheel chair lift this family is so in need of.  We had to get their permission to post this because the Bingaman’s were reluctant. This has been a very personal journey they have all taken with no complaints–what a great example of love.

The Coldwell Banker Advantage family asked the Bingaman’s to be able to share with our community their personal journey.  We wish to educate and bring  awareness of Rett Syndrome while at the same time raising funds for our very special child.

Please help us raise $50,000. towards a van with a wheel chair lift.

gofundme_logo_april_2012https://www.gofundme.com/JocelynBingaman

Here’s an important life lesson: no matter how tough you think your life is there’s always someone who has to face challenges that are even tougher than yours.

http://rettcenter.se/en/rettsyndrome/treatment/physiotherapy.htm

http://www.webmd.com/brain/autism/rett-syndrome#1

 

 

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About Coldwell Banker Advantage

This is Where Home Begins…No place has a better story than home. It begins with the first turn of the doorknob, but stays with us long after we’ve moved on and locked the door behind us. Perhaps you desire to buy, sell or relocate to Michigan’s Great Southwest, our Award Winning Brokerage Firm and Professionally Trained Agent’s are dedicated to being your trusted source of innovative solutions in today’s ever changing and challenging real estate marketplace. Our team is dedicated to creating exceptional services and experiences to all that we serve. So, whether you’re just starting your home buying search, or are ready to move to your next, contact us today and Discover Your Coldwell Banker Real Estate Advantage.
This entry was posted in CNet, Coldwell Banker, Coldwell Banker Advantage, Condos, Fall Home Improvement, Father's Day, GoFundMe, Home Buyer, Home for the Holidays, Home Improvement, Home Sellers, Millennial Buyers, Millennial Sellers, Millennials Buyers, Real Estate, Real Estate Agents, Relocation, Residential Real Estate, Sell, Smart Home Technology, Smart Homes, Southwest Michigan, Spring, Technology in Homes, Uncategorized, Valentines, Where Home Begins and tagged , , . Bookmark the permalink.

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